Samir lived with profound and multiple learning disabilities (PMLD) and complex health needs, but this never defined him. His strength, determination, and infectious zest for life touched everyone who knew him.
With the support of his family, care team, and health professionals, Samir was able to enjoy a full and meaningful life. When it came time to talk about palliative care, a truly person-centred approach ensured his wishes were at the heart of every decision. Thanks to the outstanding care from the Martlets Hospice at Home team, Samir spent his final days at home, surrounded by love and peace — something that meant so much to him and his family.
Samir’s contribution to the wider community was extraordinary. Through his involvement with Campaign 4 Change, he championed the ‘Mind Your Language’ campaign, challenging the use of language within the learning disability sector and co-presenting at the Learning Disability England National Conference. In 2019, he was proudly recognised as a Learning Disability and Autism Leader for his work in Advocacy, Policy, and the Media.
Samir also helped shape national health policy. His lived experiences informed ‘A Uniform Approach’, the new framework for Learning Disability Acute Liaison Nurses, developed by Changing Our Lives and commissioned by Health Education England. His insight and personal stories will guide and improve care for many others for years to come — a remarkable legacy.
But Samir’s life wasn’t just about campaigning. He embraced every opportunity to have fun, from winning first place in the ‘Pimp My Chair’ competition to taking part in athletics championships and therapy days. Even when his health made travel difficult, he stayed connected via Zoom — always ready to join in and make his voice heard.
Samir lived a short but wonderfully full life. His story is a reminder of the importance of compassion, choice, and collaboration in supporting people with profound disabilities to live — and die — with dignity and respect.
His legacy will continue to inspire all of us, shaping better care, greater understanding, and a more inclusive world.
